Saturday, 5 November 2011

Insight of who I am....


Understandbly, children stare just cos they are curious but MAN some adults can be so rude! Do they not know staring is rude. It's fine if they take a quick look and judge, I would maybe do the same. But come on! It's still rude!
On a bad day, I just want to SCREAM from the top of my voice that YEAH I'm different, and I've got Keratitis Ichthyosis Deafness (KID) syndrome, which is a rare, genetic, multi-system disorder.  This disorder may define who I am and it would explain why I appear different from them! ...compared to those who've got the 'perfect' skin, can hear, and see properly.  I am a person that show those people to appreciate what they have.  But most day I ponder to myself, why should I explain myself to them, but I do occassional, to answer their question and for them to realise what it is before they judge.  
But me, I am just me, I go through hard time, and still not let this condition be a barrier in doing what I want in life.  I work.  I live independently.  And I even went sky diving!! ME!???? Yes ME!
What I have been through to deal with my conditions, that nothing compare to people's staring, that's bad enough.

I am a very artistic person, I use art in different ways to express myself and who I am, not just the girl whom has health issues.  I want to be the person, that is remembered for her amazing battle with this condition, and push all barriers away.  And yet still go out of my way to help those closest to me and those in need of help.  I don't want to be the person that relies on others for help, but I will still help others in any way I can.  That's how amazing I am! Heehee

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